Just curious but is there always a specific “look” for hEDS? 🦓 Walked into clinic today and the first thing the specialist said was “nope you dont have the look for hEDS” before even asking about any of my symptoms. I understand that marfan’s or vascular EDS for example has, but im not sure about hEDS. It wasnt until i asked him if he thought that all these issues were all individual unconnected issues, that he was willing to take a second look at me and think through it. (He’s a vascular surgeon and I didn’t intend to see him for a diagnosis, but with all treatment is good to bring up medical history so yes)

Posted by Deleted (ade58139) at 2022-08-13 03:10:52 UTC