I am also intending to seek a diagnosis for hEDS in the UK next year, so I was wondering if anyone could recommend specialists they had a good experience with🥺 I know there’s a directory on Ehlers danlos society, but i cant help but to worry about bumping into someone who is quick to dismiss me & fog me off….some people who are supposedly specialised in EDS do that too and its just so nervewrecking to go through all of that again

Posted by Deleted (ade58139) at 2022-08-16 13:05:17 UTC