Is there anyone from the Bay Area (CA, USA), who’s found a doctor who knew EDS really well? I have Blue Shield, but in my darkest hours I sometimes wonder if it would be worth it to pay out of pocket to see anyone who could really evaluate me properly. It’s been sorta demoralizing to go to so many different docs that only know a little about EDS :( I’m especially hoping to get diagnosed with/put on the right treatment for MCAS. <3

Posted by SamRB at 2022-10-04 06:55:32 UTC