Hi everyone! I’m looking for advice on explaining hEDS / HSD to my partner who is not knowledgeable about the details of these conditions. I brought up it about a year ago that I thought I had hEDS because I have a lot of the symptoms and was seeing a PT who was knowledgeable about hEDS and was helping me with my rib subluxation issue and other problems. Unfortunately I was immediately aggressively shutdown because he “knows someone who has EDS and has a feeding tube and has a wheelchair so I couldn’t possibly have EDS.” I told him there are many different subtypes and everyone presents different with it, but he didn’t seem to care. I’m autistic and very conflict adverse so I never mentioned it again, despite clearly dealing with issues everyday. And my partner himself also shows clear signs of HSD or possibly hEDS (he is currently in pain with a bad flare up right now). How do I open up this conversation without being shutdown again? Thanks for your advice ❤️

Posted by Deleted (8f76f655) at 2022-10-10 17:55:36 UTC