just wanted to update that i had a really solid rheumatologist appointment, thank u all who commented and helped me with what to expect previously :’) Got referred to genetics, ophthalmology, cardiology and gastroenterology Now super nervous about the genetics appointment lol! Like what if the geneticists thinks im crazy and refuses testing or smth 🀣 Geez medical stuff r such an emotional rollercoaster But yes so so so grateful for a decent rheumatologist. Its been making such a difference when i can tell my healthcare providers that im currently being evaluated for hEDS as part of my medical history too, they take me much more seriously :’)

Posted by Deleted (ade58139) at 2022-10-31 15:22:59 UTC