Hey everyone, i want to talk with you about my cranio cervical instability. My symptoms getting worse during the last year and i have many neurological manifestations, which are very serious at this point. These are problems with sensitivity, coordination, muscle strength, balance, dizziness, cognitive disorder, fatigue and autonomic dysfunction. I figured out, that there is a huge relationship to my MCAD, because of oedema, which compress my spinal cord, brain stem and blood vessels. I do a antihistamine diet, take antihistamine medication, try to avoid my personal triggers, but i couldn’t bring it under control till now. Sometimes it feels like having a stroke. At night, i have to wear a soft neck brace, just as by day, when i have to immobilize my neck to calm down my stressed nervous system. Since this summer, i have problems with trunk instability. If i am honest, i think i have to do the cerival fusion, but this is such a high risk operation and it doesent exist neurosurgeons in germany with the knowledge about EDS and comorbidities. I don’t have the money to do this operation in USA or Spain. I also have three herniated discs in my cervical spine. So in case of operation, i need a fusion from c0 to c7. I have done physical therapy constanly for about 2 years and 2-3 times a week. But because of a kinesiophobia, pain and fatigue, i trained not as disciplined as i have should been. I need a solution for my neck instability, trying to get more stable and stronger. I asked myself, if its possible with exercises or not. I don‘t want to make it even worse altough i make sure, that i do it in a gentle way. I would be very interested in other experiences, if there are zebras with similiar problems.

Posted by Deleted (5084c5b3) at 2022-11-17 22:22:18 UTC