Sad note for those in the US: the EDS clinic at Mayo in FL, which just opened in 2018, is now closed to new patients indefinitely. They say due to overwhelming demand. The fact that they are referring people to a single doctor in Florida and a blanket mention of the EDS society website tells you something about how few options we actually have here for comprehensive diagnosis - much less ongoing management. :(

Posted by ClaireS at 2023-01-14 12:23:14 UTC