I know this is a safe place to share common frustrations... I was recently contacted by a very old friend who I don't often chat with because of her schedule and distance. I told her about my EDS/mcas/pots diagnosis. Her response was "I know all about EDS because I watch RuPaul drag race and one of the drag queen's has it. Eds is just a joint issue. Why aren't you getting out there?" I think this is the down side of celebrities sharing their diagnosis. "If so and so celebrity has it, why aren't you doing what they're doing?"

Posted by heatherc at 2023-01-23 15:34:26 UTC