Does any one have, or can direct me to, a simple, easy to read, no more than half page summary of symptoms of hEDS? I was sure I had one, or could find one somewhere, but no luck. I looked at the EDS Society but didn't see any. I'm going to a new provider tomorrow who probably won't know much about EDS. I'm great at advocating for myself, but I tend to be long-winded. When I see their eyes glazing over, I stop, then realize later that I left something out. If I could leave them with something simple that would be great.... (something they might actually read and not stick in the file or in a pile on their desk for a "later" that never comes).
Posted by Bahercat at 2023-02-22 01:38:32 UTC