For me the hardest thing is to accept and give in to the days I don’t feel well. I haven’t shared my diagnosis of hypermobility with my family because they have not listened to me my whole life about how I feel. So when I don’t feel well I think it’s my fault I’m just being weak willed. When I tried to talk to my primary care about it he said “what’s the point of pursuing a diagnosis there’s nothing you can do about it.” I get tired of having to be my own advocate, trying to figure this out on my own and the inability to find somebody who understands it and can help me

Posted by sharferrin at 2022-02-06 13:50:33 UTC