This is something I've been thinking a lot about and I'm wondering what everyone else thinks. How did you decide to pursue a formal diagnosis compared to just being told you're hypermobile and doing your own research to understand what that means (and can even explain all of the issues you've been dealing with your whole life in some cases) and how to manage it through things like TZC? Or does being told you have hypermobility count as a diagnosis if it's done by a physio and then it's just needing confirmation of what type it is, so then you know how to manage it better? #diagnosis

Posted by Katie M. at 2023-03-29 18:41:38 UTC