Hi everyone my name is Tobias, 31 years old from Switzerland. I'm new here. I haven't been officially diagnosed with HEDS yet, but everything points at least to HSD (the clinical differentiation seems to be hard sometimes). I am looking forward to discovering more ways to stabilise my joints and be more in tune with my body. Currently there is a lot of frustration about what I fear I am going to miss out on in my life (skiing, tennis, beach volleyball, weightlifting etc) as exercise and sports are very important to me. Accepting my limitations while having high goals and expectations has proven to be very difficult.

Posted by Tobias at 2023-05-10 14:22:17 UTC