Hey friends Ah this is gonna be a messy post and I wanna apologize beforehand for that. I‘m having a really hard time dealing with my pain and fatigue and everything. I now definitely have to change the profession I originally learned and love. And then, besides being so restricted by alll of that. Besides trying really hard. There are people (family members and doctors) that say things like I‘m not trying hard enough or they make me feel like I‘m exaggerating. And it has gotten to a point where I feel like I am gaslighting myself into thinking I have those symptoms. Like, I know that it’s real. But due to all the doctors that I‘ve met before my diagnoses, who made me feel like it was all in my „head“ and from time to time I do meet similar doctors (but not my current specialists, thank God), and I simply get flashbacks. And I know I have medical trauma but right now, in this very moment I don’t know how to cope with this. I sometimes am in so much fear before meeting new specialists bc I‘m afraid that they won’t take me seriously. I do have professional help for that fear, but my EDS specialist just reminded me today how important it is to talk with other affected people and share experiences. So, I was wondering, for those of you who know these feelings…what helps you to cope with that?

Posted by Anina Joy 🦓 at 2023-05-30 20:53:12 UTC