Diagnostic process of Vascular EDS in the UK? I was diagnosed with hEds years ago. I’ve just seen a new, very switched on GP who went through my medical history. She said she is concerned I actually have vascular EDS as I have a lifelong history of haemorrhaging, bruising easily, visible veins and varicose veins that developed in childhood. She is going to do more research and I see her on Monday again. I’m not looking for medical advice but just wondered if anyone in the UK (I’m in England) knows what the diagnostic process is for vascular EDS, where genetics testing is done and if there are any private geneticists I could see to speed up the testing process if my GP thinks it’s required? Thanks Zebra 🙏🏻

Posted by Aurora69 at 2023-06-14 17:10:17 UTC