Hi 🦓, I guess this question is more for @Jeannie Di Bon. I'm looking for providers in my area that have experience with HSD and hEDS and I finally found 2 from Pittsburgh on the EDS website. My question is, what qualifies one to appear on the website, is it just self reported experience? Not everyone can be a Jeannie, or Dr. Russek, or Dr. Bluestein, so I'm wondering how much weight to put into this affiliation, especially since some don't work with my insurance plan. Thank you!

Posted by Florentina at 2023-06-15 14:53:51 UTC