Hello all! Has anyone had experience with invasive testing (angiogram, TEE) or surgery for heart issues? My daughter, who also has hEDS, has an unrelated heart valve problem and is going to have to have a valve replaced sooner than later. The TEE (transesophageal echocardiogram) was very hard on her system. Just looking for any kind of input from others' experiences. (The medical team is aware of her EDS diagnosis.) Many thanks...

Posted by gmanusov at 2023-08-04 21:12:52 UTC