Dystonia—the rarely talked about symptom of EDS! This researcher from France is basically describing my life. Muscles that go into spasm (sometimes for hours) or cramps, muscle twitches, tight hamstrings (with an inability to perform one of the Beighton score tasks of touching the floor), possible tremors… I also had two babies born with stiff necks Hope this helps someone! http://www.heraldopenaccess.us/openaccess/ehlers-danlos-proprioception-dystonia-dysautonomy-l-dopa-and-oxgenotherapy-s-efficacy

Posted by Amanda C at 2023-08-05 19:28:37 UTC