Hi all you lovely zebras . I get so confused when leaflets etc and my rheumatologist say I have Joint Hypermobility but not Ehlers Danlos syndrome . I thought I had hypermobility ehlers Danlos syndrome but the rheumatologist gave me a leaflet on joint hypermobility and never mentioned EDS . I am phoning the school about my daughter and I am referring to jEDS but now I don’t know . This photo below says there is a difference but I thought it was all EDS . Sorry if that’s all confusing . It’s almost like they don’t want to use the term EDS . Any help about this would be much appreciated xx

Posted by gyll5 at 2022-03-11 07:56:32 UTC