I want to talk about a win that happened last week (I had a long week so didn't get a chance to mention it then). I had an appointment with my PCP for my yearly physical and got a chance to bring up the possibility that I have EDS and all of the comorbidities and she didn't even blink. She knew what it was and understood what I was saying. It was not at all what I was expecting even though I've gone to her for years. All this is to say, it's nice to be believed and there are medical providers out there who care and understand and are willing to learn and I think that's a really great thing and it gives me hope (even if it's small).

Posted by Katie M. at 2023-09-06 02:04:10 UTC