#newmember I’m very new to learning about EDS, however reading your posts, it feels like coming home as clearly it’s been going on for a really long time (35yrs) and feels like a blessing to have a ‘reason’ for all the symptoms (likely PTOS and Mast cell too!) I’m 47, living in the UK in South Warwickshire. I am in the process of diagnosis and delighted to find the zebra club, to learn more and connect with other people with EDS. Jeannie mentioned there was a UK group. I couldn’t see that one, please could you help me find it?

Posted by welsh_jane at 2023-09-17 10:32:50 UTC